A practical, validated generic measure of hrqol facilitates assessing risk, tracking health status, and measuring treatment outcomes in pediatric populations. Items are reversed scored and linearly transformed to a 0100. Pedsql gastrointestinal symptoms scales and gastrointestinal worry scales in pediatric patients with functional and organic gastrointestinal diseases in comparison to healthy controls. Measures pediatric quality of life inventory tm pedsql tm 4.
Aug 01, 2009 the past decade has evidenced a dramatic increase in the development and use of pediatric healthrelated quality of life hrqol measures in an effort to improve pediatric patient health and determine the value of health care services. A study for the standardization of the korean version of the pediatric quality of life inventorypedsqltm 4. Damiano 5 1 departments of health management and policy, economics, and preventive and community. The infant toddler quality of life questionnaire itqol adopts the world health organizations definition of health, as a state of complete physical, mental and social well being and not merely the. Objective the pediatric quality of life inventory pedsql is a modular instrument designed to measure healthrelated quality of life hrqol in children and adolescents aged 218 years. Quality of life of children and adolescents from sao paulo. Considering the emerging problems after transplantation, an evaluation o.
Quality of life therapy depends upon the use of the quality of life inventory. The pediatric quality of life initiative peds ql version 4. The 23 items of this questionnaire cover the core dimensions of health delineated by the who physical, social, and emotional functioning, as well as role school functioning. This study aimed to investigate the reliability and validity of the iranian version of the pediatric. The authors of the measure conceptualize healthrelated quality of life as the physical, psychological, and social functioning of the child. The authors of the measure conceptualize healthrelated quality of life as the physical, psychological, and. Assessment of quality of life in children and youth with. Pediatric quality of life inventory pedsql springerlink. Our objective in this study was to assess the psychometric properties of the english uk and usa version of the pediatric quality of life inventory 3. The pediatric quality of life inventory or pedsql tm, now in its fourth version, is a series of assessment instruments designed to measure the healthrelated quality of life of children. Pediatric quality of life inventory multidimensional.
Please tell us how much of a problem each one has been for your during the past one month by circling. Development of the japanese version of the pediatric quality. The pediatric quality of life inventory pedsql tm 4. Spearman correlations and logistic regression were used to explore the relationships between the variables. The pedsql is a generic, healthrelated quality of life hrqol instrument developed to measure the core dimensions of physical, mental, and social health, as well as role school function. Pdf the pediatric quality of life inventory pedsql. Pediatric quality of life inventory pedsql difficulty. The objective of this crosssectional study is to evaluate the reliability and validity of the pedsql. Scaling and scoring of pediatric quality of life inventory pedsql. Measurement model for the paediatric quality of life. Pdf some psychometric properties of the pediatric quality. Jul 20, 2020 background neuromuscular disorders nmds are chronic illnesses that adversely impact the lives of patients and their families. Development of the japanese version of the pediatric.
The pedsql pediatric quality of life inventory childrens hospital and health center, san diego, california is a modular instrument for measuring healthrelated quality of life hrqol in children and adolescents ages 2 to 18. Child health questionnaire chq, disabkids chronic generic measure dcgm, kindl. Reliability and validity of the pediatric quality of life inventory with individuals with intellectual and developmental disabilities michelle a. The pedsql in type 1 and type 2 diabetes diabetes care. Pediatric quality of life inventory pedsql measurement model. Psychometric analysis of the pediatric quality of life. It is a modular approach to measuring healthrelated quality of life in both healthy children and adolescents and in those with acute and chronic health conditions. Qol measures using selfreports were uncommon, and the reliability and validity of qol measures were not sufficiently reported for this population. Pediatric quality of life inventory pedsql in fragile x. Validity and responsiveness of the pediatric quality of life. Pediatric quality of life inventory multidimensional fatigue. Outcome measure pediatric quality of life initiative peds ql.
The pediatric quality of life inventory pedsql measurement model survey integrates generic core scales and diseasespecific modules. View the article pdf and any associated supplements and figures for a period of 48 hours. Paediatric patients selfreport of healthrelated quality of life hrqol has. Perhaps the most widely used and well researched measure of hrqol is the pedsql. Core scales 27 has emerged as a widely used generic hrqol measure in pediatric chronic. Scaling and scoring of the pedsql tm pediatric quality of. The infant toddler quality of life questionnaire itqol was developed for use in infants and toddlers from 2monthsto5 years of age. The pediatric quality of life inventory pedsql measures healthrelated quality of life, a growing area of research, particularly among individuals with disabilities. Pediatric quality of life inventory gastrointestinal. The pediatric quality of life inventory pedsql family impact module is a multidimensional instrument developed to assess the impact of chronic medical conditions on the hrqol of parents and. The pedsql is a questionnaire that assesses health related quality of life in children and adolescents. This study aimed to translate the pediatric quality of life inventory pedsql 3.
Klatchoian da, len ca,terreri mt, silva m, itamoto c, ciconelli rm, et al. Fatigue in adolescents with cancer compared to healthy adolescents. Pediatric quality of life inventory pedsql administration. To test the measurement properties of the revised and updated pediatric quality of life inventory pedsql 3. Pediatric quality of life inventory pedsql agerange. As the symptomatology and impact of pediatric cancer is heterogeneous and overlaps with other pediatric chronic conditions,24,25,27 pediatric can. Disability, quality of life, and pain coping in pediatric. Means were compared to published norms using ttests. Pediatric quality of life inventory pedsql request pdf. Pediatric quality of life inventorypedsql psychosocial health summary score listed below are the details for the data element. Pediatric quality of life inventory incorporates this integrated generic core and diseasesymptomspecific modular approach for pediatric chronic health conditions. Pdf the pediatric quality of life inventory pedsql 4. Weiss abstract the pediatric quality of life inventory pedsql measures healthrelated quality of life, a growing area of research, particularly among individuals with.
Comparing the visual analogue scale and the pediatric quality. Pdf healthrelated quality of life hrqol is today considered an important assessment measurement, but still only a few measures assess. An expert panel made up of children with cancer, their parents, and health care professionals were asked to identify the most salient dimensions underlying the quality of life construct. It contains questions about your childs physical, emotional, social, and school functioning in the past one month or for the acute version, in the past 7 days. One of them is the pediatric quality of life inventory pedsqltm. The pediatric cardiac quality of life inventory pcqli. May 2017 page 3 of 146 pediatric quality of life inventory pedsql child and parent reports for young children ages 57, children ages 812, teens ages. The pediatric quality of life inventory pedsql is a brief measure of healthrelated quality of life in children and young people.
On the following page is a list of things that might be a problem for. The pedsql pediatric quality of life inventorytm measurement model, developed by dr. Pdf the pediatric quality of life inventory pedsql tm 4. Pediatric quality of life inventorypedsql psychosocial. Pediatric quality of life inventory pedsql melissa a. Research open access validity and reliability of the iranian.
The purpose of this study was to find the applicability of pediatric quality of life inventory pedsql 4. Eightyfive patients with migraine were recruited from pediatric neurology clinics. This prospective, cohort study of the pediatric quality of life inventory 4. Development and validation of the pediatric oncology quality. Varni and associates, is a modular approach to measuring healthrelated quality of life hrqol in healthy children and adolescents and those with acute and chronic health conditions. This research is necessary to fully understand the varied needs of the population and, ultimately, ensure. Patientreported pediatric quality of life inventory.
Reliability and validity of the thai pediatric quality of. Please visit proqolideprovide for more information. The pedsql pediatric quality of life inventory childrens hospital and health center, san diego, california is a modular instrument for measuring healthrelated quality of life hrqol in. The information generated from these sources was used to construct an item pool.
The pediatric quality of life inventory pedsql is a modular instrument designed to measure healthrelated quality of life hrqol in children and adolescents ages 218 years. The pediatric quality of life inventory pedsql is a modular instrument designed to measure health. Development of the pediatric quality of life inventory. The methodology was that 360 subjects and their parents were selected under four age groups i. Research article open access development of the pediatric quality of life inventory eosinophilic esophagitis module items.
Participants completed the pediatric migraine disability assessment scale, the pediatric quality of life inventory, the pain coping questionnaire, and the pain catastrophizing scale. The pediatric quality of life inventory pedsql is a generic, multidimensional measure of hrql in children and adolescents. Reliability and validity of the pediatric quality of life. The pedsql measurement model integrates seamlessly both generic core scales and diseasespecific modules into one measurement system. General for all diseases assessments and examinations. Paediatric quality of life child outcomes research consortium. The pediatric quality of life inventory pedsql is officially distributed by mapi research trust. Pediatric quality of life inventory pedsql measurement. Health related quality of life of children with rheumatic. On the following page is a list of things that might be a problem for youyour childyour teen. Quality of life inventory pcqli is a diseasespecific hrqol instrument for children 812 years of age and adolescents 18 years of age with congenital or acquired heart disease hd. Patients with dmd from the uk and the us completed the pedsql nmm online. Comparing the visual analogue scale and the pediatric quality of life inventory for measuring healthrelated quality of life in children with oral clefts george l.
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